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“Voices” from the Pandemic: Call for Articles on COVID-19

October 22, 2020

The Sylff Association secretariat is seeking submissions of articles about COVID-19 to be published in the “Voices from the Sylff Community” section of the Sylff website. We hope to showcase the insights and activities of Sylff fellows related to the global pandemic and its social impact, the sharing of which may help others to better cope with the difficult circumstances. The articles will also be published in e-book form in 2021.

Articles should describe your insights, analyses, or activities related to the novel coronavirus. They can be written from either a professional or personal point of view. We will accept articles that have been printed in other media.
Two COVID-related articles have already posted on the Sylff website:

Providing Space for Good Conversations on YouTube amid the COVID-19 Pandemic” by James Martyn

“What COVID-19 Can Teach Us about Prison: Reflections on Criminal Policy and the Words of Albert Camus” by Rui Caria


Submission Guidelines

Length: Approximately 1,500 words (may be longer depending on content)
Quotes: Please cite sources if you include quotes
Photos: Digital photos to go with the article are encouraged but not mandatory
Deadline: February 28, 2021
Submission: Send your article to sylff@tkfd.or.jp. The email subject line should include “VOICES COVID-19”

We are looking forward to receiving your “Voice” about the pandemic.

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[BigDataSur] “WhatsApper-ing” alone will not save Brazilian political disarray: An investigation of the affordances of WhatsApp under Bolsonarism

October 16, 2020
By 27510

This article reflects on the role of “WhatsAppers”, defined as social activists appropriating WhatsApp as a primary platform to organize and communicate, in relation with the rise of Bolsonarism in Brazil. Affordances of WhatsApp usage by social actors are explored in the light of responses to Bolsonarism, along with their implications in the current time of crisis.

* * *

Photo credits: Lo Cole / The Economist

The research illustrated explores the affordances of WhatsApp and its appropriation by the WhatsAppers in Brazil, here defined as social activists appropriating WhatsApp as a primary platform to organize and communicate. I explore the importance of the Global South context in shaping such affordances, focusing on local epistemologies which bypass the structure of mainstream Brazilian media. As illustrated elsewhere, the empirical analysis combined different qualitative methods, yielding insights into the communication and action repertoire of the group studied, not without considering reflections on research ethics and their implications in the context studied.

WhatsAppers: Towards a new research agenda

This research stems from an analysis of the social interactions of UnidosContraOGolpe (UCG), a leftist group in Brazil, which was a WhatsApp “private group” emerged in 2016 to oppose the controversial impeachment of the then-president Dilma Rousseff. The case study resulted into the first empirical MA dissertation in Latin America to explore digital activism on WhatsApp private chats as an emerging field of political action. To do so, a ‘meso-micro’ analysis was used – on the meso level, to identify the modus operandi of group interactions and, on the micro level, to capture individual motivations, tensions, and expectations. At the core of the investigation, the researcher’s identity was disclosed, following social actors through their chat environment and adopting an ‘engaged’ approach, whereby the research is designed with the goal of empowering social actors. In practical terms, this inspired a triangulation of qualitative methods, including digital ethnography (to identify and analyze the practice of social actors inside the chat domain, through a long “zoom” perspective on social interactions in the private chat group), content analysis of selected posts (to understand how the group emerged organically and self-organized in a contingent manner) and fifteen in-depth semi-structured interviews (to elicit values and motivations from the perspective of individual active participants).

This dissertation argues that WhatsAppers are characterized by their ability to appropriate the chat group as a means to participate in political life. Engagement with political activism becomes an intimate and familiar affair, mediated by a personal and omnipresent device, that enables a unique approach to mobilization. In general lines, everyone could be a WhatsApper, including those not previously politically active. A WhatsApper could be someone who already is entwined in other social media networks of politics and mobilization or not; they can be someone from a poor, middle or rich class background. In other words, WhatsAppers interact digitally with others, combining online and offline political actions. Through the lens of digital sociology, the case studied reveals that WhatsApp stands out as a platform for civic engagement, promoting new spaces of digital activism for three main reasons: the chat app (1) affords structurally new forms of political participation and collective engagement, (2) forges communities of mutual interest, and (3) promotes collective decision-making and individual autonomous actions on a small scale. However, drawbacks are found in howbots can influence conversations on WhatsApp, fake users can hijack chats, and group members may be threatened by surveillance attacks.

Bolsonarism: into the Brazilian political crisis

In 2019, the first year of Jair Bolsonaro’s government, Brazil has seen a record deforestation and a drop to zero applications of environmental fines. Bolsonaro nominated a human rights minister who was well-known for preaching sexual abstinence as a state policy. Sons of the president are under investigation of crime and corruption. Also, Bolsonaro has nominated a secretary of culture extolling Nazi propaganda. Moreover, every week the Brazilian “anti-president” openly attacks the press, and recently was considered the worst leader to struggle against the Coronavirus pandemic.

The political scenario in which Bolsonarism surges is widely recognized as reflecting a crisis of political representation and the widespread disbelief in politics and traditional parties. Bolsonarism can be understood as “a political phenomenon that transcends the figure of Bolsonaro and is characterized by an ultra-conservative worldview, returning to traditional values and nationalist and patriotic rhetoric”. Facing this scenario, an urgent question should be addressed: what is really happening to Brazilian democracy?

Looking back, looking forward

Brazil is an extremely unequal country along multiple dimensions that include internet access. Part of the semi-illiterate population gathers their information almost solely through visual messages, audios and videos from thousands of WhatsApp groups, thanks to the “zero rating” fees provided by telecom companies that replaced more expensive short-text messages. The larger context of Latin America makes an excellent test bed for the study of WhatsApp social interactions because “96 percent of Brazilians with access to a smartphone use WhatsApp as primary method of interpersonal communication”. According to the Reuters Institute, 53 percent of Brazilians use “ZapZap” (as the app is commonly known in the country) to find and consume news. Everyday citizens also use “ZapZap” to order pizza, stay in touch with family, transfer money, make doctor appointments, learn, spread gossip and date.

While the leftist “UCG” WhatsAppers were calling for political action, far right activists were articulating themselves in WhatsApp private groups and beyond, also combining online and offline activities. Progressive sectors were as well unable to build a national digital campaign, with very rare exceptions, such as small local initiatives like UCG. Consequently, the potential of digital activism on chat apps was later weaponized by far-right groups that not only appropriated public and private groups on and with WhatsApp, but also acted as pipeline to other social media. Digital information became a “weapon” that is still used in “out of control” mode nowadays by Bolsonaro’s supporters, taking advantage of the high penetration of WhatsApp in Brazil, and facilitated by the limited digital literacy of the population. In fact, Bolsonaro ran a successful campaign in 2018 based on a combination of bottom-up authoritarianism and digital populism. His supporters were helped by bots to spread misleading content “weaponizing” various WhatsApp groups.

COVID-19: creative WhatsAppers from the margins

This case presents important implications for the ongoing crisis. Brazilian citizens are currently bombarded with COVID-19 related disinformation and facing a chaotic portrait, while far right activists occupied larges spaces on digital networks before and after the 2018 elections. Moreover, there are lessons learned from the inability to stop Bolsonarism’s digital army, namely: send messages which everyday citizens can trust. Today, Brazilians behave more and more like consumers instead of citizens, trusting the market more than science – perhaps this is precisely the gap that paves our country for thousands of deaths during the coronavirus pandemic.

Brazilian mainstream media are currently discussing who might be a potential presidential candidate for the next elections in 2022. However, a deeper question is whether democratic values will still be upheld at that time. The composition of Bolsonaro’s government reminds us that Brazilian’s young democracy is now more capitalist, colonialist, patriarchaland is heading towards a dangerous and irresponsible political adventure, and the outcomes are unpredictable. During the pandemic, social distancing, hand washing, hand sanitizers, masks, respirator machines and lockdowns are privileges of the Global North, while in the South, many will not even have access to minimum services.

As the title suggests, using WhatsApp for chatting and hanging out alone will not solve the political Brazilian disarray, but perhaps creative WhatsAppers could provide a spark to create national-transnational solidarity. Namely: high speed participatory decision-making to deliver groceries, collect money, produce masks, share scientific information, mobilize against COVID-19 related disinformation, reach poor families and fight for emergent democratic imaginaries. The UCG case study still works as a well-informed internal communication strategy for connecting and activating social solidarity networks that grounds for hope, especially because it reveals the battlefield of political struggle that enables scientific shared information, civic engagement, collective mobilization, and solidarity. Lastly, the coordination of online activities combined with actions on the ground by WhatsAppers triggers digital activism in times of pandemic.

About the author

Sérgio Barbosa

Sérgio Barbosa is a PhD candidate in the program “Democracy in the Twenty-First Century” in the Centre for Social Studies (CES), at the University of Coimbra and a Sylff fellow sponsored by Tokyo Foundation for Policy Research. He is a member of the Technopolitics – a “Latin” research network connecting Brazil and Ecuador with Spain, Portugal and Italy. His research explores the emerging forms of political participation vis-à-vis the possibilities afforded by chat apps, with emphasis on WhatsApp for digital activism and social mobilization

Acknowledgments

The author thanks Silvia Masiero for her careful review (and beyond) and wishes to thank Charlotth Back and Jeroen de Vos for their comments and suggestions. He extends his gratitude also to Stefania Milan and Emiliano Treré for launching Big Data from the South initiative. This blogpost has received funding from the Sylff (Ryoichi Sasakawa Young Leaders Fellowship Fund) Research Abroad – SRA fellowship sponsored by the Tokyo Foundation for Policy Research.

 

Reprinted, with a lead by the author, from DATACTIVE Big Data Sur blog, https://data-activism.net/2020/06/bigdatasur-whatsapper-ing-alone-will-not-save-brazilian-political-disarray-an-investigation-of-the-affordances-of-whatsapp-under-bolsonarism/.

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Providing Space for Good Conversations on YouTube amid the COVID-19 Pandemic

September 18, 2020
By 25157

James Martyn completed his Doctorate at Massey University in New Zealand in 2014–16 as a Sylff fellow. He currently works as a psychologist at the Department of Corrections in Tauranga, the fifth most populous city of New Zealand, and privately as a mental health consultant. Amid the worldwide COVID-19 pandemic, James has been utilizing his expertise in creating space for good conversations through a short video series on YouTube, covering such useful topics as stress and better habits under the difficult circumstances.

* * *

Introduction: Good Intentions

I have always wanted to be the sort of person who can be helpful in a time of need; to know not only that I can help if needed but that the type of help I can provide is useful. It is one of the things that led me to become a psychologist. But if I am honest with myself, there are many days when I feel like I fall short. As I sit and reflect on life, I often feel an internal pull toward doing more for others: to give more, be more, and have more of an impact. Too often, I think of the “big” things I wish I could do or might do in the future to be useful. However, during these times, it is easy to discount the small and perhaps equally important things we can do today to be helpful. It is my intention to focus not only on the big things in the future but also on the small things and the small ways in which I can be more outwardly focused today.


Coronavirus: Different Boats, Same Storm

Amid the coronavirus pandemic in 2020, we have all witnessed and experienced a rapidly changing world. These changes have contributed to a wide range of very real challenges that we have either experienced or observed in ourselves and in others. Whether the challenges were experienced emotionally, physically, socially, psychologically, or spiritually, there are very few people who have not been affected in some way by the recent circumstances. 

While I think it is a misconception that we are all in the same boat together during this pandemic, I certainly feel we are all experiencing the same storm. At times the figurative rain and wind have felt unrelenting. During this time some of our boats, for a variety of reasons, continue to fare better or worse than others. But like all storms, this too will pass—although this particular storm will be long remembered. The storm’s gift and curse is that it has brought to our attention a number of areas, personally, nationally, and even globally, that may require some repair to ensure our safety and the safety of others in the future. 

In our small country of New Zealand, with just over five million in population, it is easy to see that we have been incredibly lucky as a whole, despite the suffering of many. As of this writing, our country has been fortunate enough to be able to lift almost all of its coronavirus restrictions, despite some fluctuates across the country. However, New Zealand, as with many other countries, continues to face struggles. The increased stressors, pressures, and uncertainty that have arisen alongside the implications of the coronavirus have had and continue to have an impact on many people’s mental health and well-being. 


How Can I Be Helpful?

Just a few months ago, our country, like many others, entered full lockdown. We began to face the challenges of social and community disruption, financial pressures, and interruptions to many aspects of our daily lives on a scale that we had not seen before. While many people did not experience significant difficulties, for others the impact and uncertainty brought considerable stress. 

As a psychologist, I continue to work with adaptations to my day-to-day activities. In one of my roles, I work as a consultant with a friend and colleague at Lumind.co.nz. Lumind is a small start-up consulting and training company that we created with the intention to provide accessible, useable, and relevant evidence-based psychological information to businesses and community groups. Our aim is to help groups to “mind what matters.” Talking via Zoom, at one point we discussed the likely implications of the coronavirus on mental health. We wanted to help in some way, to find a place to step outside of our comfort zone. Together, we have often discussed the “big” ideas and dreams about what we can pursue. In doing so we have dreamt, strategized, and reflected, often at the expense of acting in the short term. This is not to say that taking time to think big is unhelpful, but I feel our focus on the future can at times lead to missing the smaller opportunities that lie in front of us. Consequently, as we spoke about wanting to be useful in this moment of the coronavirus pandemic, we decided to put aside our preconceptions of having a polished product and simply try to give some of our knowledge and resources to others. We tried to be useful in our own small way.


Our Mental Health and Technology Focus

Our particular area of interest at our business, Lumind, is the intersection between mental health and technology. It is our view that at present, psychological resources are not delivered effectively. Access to evidence-based psychology assessment and intervention in the community is typically bottlenecked by limited service resources. This is due in part to numerous barriers that surround current mental health treatment and delivery, which have contributed to discrepancies between treatment needs, availability, and uptake. Consequently, too many people who could benefit from psychological resources and greater well-being ultimately miss out on or are not afforded equal opportunity for access. It is our view that technology is one critical component that can help disseminate evidenced-based psychological resources and potentially improve access to appropriate resources in the future. We feel that this may subsequently work to improve mental health and well-being for many who may have otherwise missed out. 

Mental health and well-being has become an increasingly popular topic in recent years. New Zealand was the first country in the world to develop a “Wellbeing Budget.” Additionally, the number of well-being-focused websites, applications, podcasts, books, and other resources has grown exponentially. On the whole, this is a great thing. However, not all content is created equal. It is our view that there is a lot of information available through technology that has good intentions, but not all are evidence based. In some cases, the content and delivery method may even lead to a negative outcome. As such, we feel that psychologists should have a voice in the well-being and technology area. Lumind wants to be part of the conversation.


Creating the “Minding What Matters” Video Series


With this in mind, outside of our normal work, we decided to do something small using technology—something that utilized our expertise. As with any time you put yourself out to the public, it was very easy to think of the reasons not to go ahead. For instance, there was plenty of other content available online; our video and audio quality was relatively low; given that our content was casual and unscripted, we may say something incorrect or that may be judged differently than our intention. However, when we came back to our intention—to show support to our community in a time of need—we felt that the benefit was worth the effort. 

As psychologists, we are not trying to pretend we “have it all together.” We understand that we have our own paths climbing our own personal mountains with their own unique set of challenges. However, from our vantage point on our mountain, we may be able to see your position from a different angle. Our perspective, as well as the skills we have developed along the way, may be valuable to share. As such, my colleague and I decided to put together a short video series titled “Minding What Matters.” Each video was a casual, lighthearted, and short conversation with other psychologists. Together, we chatted around a particular topic area that we thought may be helpful during COVID-19 and beyond. 

The result was a series of nine videos available on YouTube with such topics as “virtually supporting someone who is struggling,” “dealing with anxiety and worry during difficult times,” “parenting tips during stressful times,” and “why bad habits strike during stress.” In total, we have had around 900 views so far. Our intention has never been to obtain media views, but to be useful. It has been great to see that a few people have found it beneficial along the way. We have had positive feedback from people in care-type roles and helping professions, strangers, parents, and our friends. That is all we could have asked for. 


Conclusion: Remembering That Small Steps Matter

We are well aware there is better content with better quality available. But I think there continues to be space for both small and big projects; space for good conversations around relevant topics and based on evidence-based principles. In the future, it would be great to work more in this space, perhaps even take more risk and step further out of the comfort zone. But it has been a valuable experiment, one that has taught me to not take things too seriously and that taking small steps to help others today may at times be more effective than waiting for the “right time” to make many big steps to help others in the future. I think there are a lot of opportunities out there, ready for psychologists and other professions to share their skill set. I am learning to be bolder and to open my eyes to what these opportunities may be, both now and in the future. I hope you are too.


Lumind Channel on YouTube

https://www.youtube.com/channel/UCFr_ZQRaUGIVatjTrdVlbYg

Lumind is a start-up psychology consulting and training company consisting of co-directors Dr. James Martyn and Matt Hegan. Lumind aims to provide accessible, useable, and relevant evidence-based psychological information to businesses and community groups. Lumind’s purpose is to help people focus their “mind on what matters.”

Episode 1: Why This Series
https://youtu.be/vppYkanPXXI

Episode 2: Being Who You Want to Be
https://youtu.be/vppYkanPXXI

Episode 3: Anxiety and Worry during Difficult Times and Lockdown

Episode 4: Mindfulness—Calm in the Chaos of Lockdown
https://youtu.be/ztv625cG1T4

Episode 5: Psychologist Parenting Tips during COVID Lockdown

Episode 6: Mental and Physical Performance during Lockdown
https://youtu.be/TRnck0X_qVE

Episode 7: Virtually Supporting Someone Who May be Struggling

Episode 8 (BONUS): Psychologist Learns from 6-year-olds—How to Be a Good Friend in Lockdown

Episode 9. Why Bad Habits Strike during Times of Stress
https://youtu.be/RKMrPMR6t4Y

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COVID-19 Relief Provided to More Than 300 Fellows, but More Help Needed

September 10, 2020

To counter the negative impact of COVID-19, the Sylff Association secretariat is providing emergency financial support called “COVID-19 Relief for Sylff Fellows” to ensure that fellows are able to continue their studies toward their degrees at their home Sylff institutions.

So far, we have mobilized internal resources to provide relief to more than 300 fellows to cover their living expenses for about three months. However, we require more financial resources to complete this relief effort. Under the circumstances, we are asking the members of the Sylff community for donations.

The secretariat hopes that former Sylff fellowship recipients and others affiliated with Sylff institutions will take this opportunity to show their generosity and support for current fellows.

Some comments received from relief recipients:

Your letter comes as a bright light in the darkness. […] I am right now moved to tears. Thank you for caring so much about us, the Sylff Fellows, and for giving us hope!

 “This funding will help me in my daily life […] With this help, I can cover my daily expenses and to continue my studies in the best possible conditions during this difficult time.”

 “The […] letter from Mr. Sasakawa, Association's Chairman, and Ms. Kadono, the President of the Tokyo Foundation for Policy Research has left me speechless and in deepest appreciation of your association's generous contribution to the continuation of my future research.”

I wish to express my deepest gratitude for the consideration to offer me financial assistance during this rather difficult period. I really have no words to just say how grateful I am - THANK YOU SO MUCH!!

This money will be of great help to me and my family, this period has been very difficult because [of] the pandemic […] and we were trapped there for three more months.”

 “[Y]ou have lightened my financial burden even in a pandemic which allows me to focus more on the most important aspect of school, learning.

We wish to thank all those who already contributed to our fundraising initiative.

[How-to-Give] Our online donation now accepts credit cards - VISA, MasterCard, JCB, American Express and Diners. Please give today! (Donation campaign closed on November 13, 2020.)

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What COVID-19 Can Teach Us about Prison: Reflections on Criminal Policy and the Words of Albert Camus

August 31, 2020
By 24051

Rui Caria, a PhD candidate in criminal law at the University of Coimbra, summarizes the ongoing discussions about the confinement of prisoners under the COVID-19 pandemic. He discusses the human dignity of prisoners and the purpose of prisons and punishment by drawing on ideas that Nobel Prize winner Albert Camus describes in his famous novel The Plague.

* * *

Introduction

During my second semester, like many others, I had my life put on hold by COVID-19. I was sent to work from home, and class lectures were provided by Zoom, allowing me to keep studying by looking through the tiny box that is my computer screen. As much as one tries to halt the fall of productivity, it eventually gives way to reflection; one that is personal as much as social. By looking at the other tiny box that is my TV, I could watch the news and learn about all the people who found themselves confined.

During quarantine, I found it fitting to reread a novel by one of my favorite authors: The Plague, by Albert Camus. It made me realize that the most fortunate of us were confined at home; others, not so fortunate, were confined in the places where they had made their travels. But there was a third category of confined, one that is seldom talked about: prisoners.

 

To Release or Not to Release?

Across the world, there was a great discussion about what to do with prisoners during the pandemic, the question being whether they should be released or not in order to minimize the risk of a health catastrophe in prisons. The importance of the issue was highlighted by various entities, from the World Health Organization (WHO) to the Council of Europe. The debate had to grapple not only with the big question itself—to release or not to release—but also, if the question is to be answered affirmatively, on what grounds they should be released.

In my country, Portugal, legislators approved an extraordinary regime of prison flexibilization in the midst of the COVID-19 pandemic. This new law (no. 9/2020) allowed for a partial pardon of prison sentences, a special regime of reprieve of sentences, an extraordinary regime of licenses for administrative leave of inmates, and extraordinary anticipated parole.

The Portuguese Parliament (Assembleia da República).

On the other side of the world, in the United States, which has the world’s largest number of infected combined with the world’s largest prison population, policy solutions have been suggested to reduce the number of people in jails, as well as in state and federal prisons. These focus not only on increasing the number of releases but also on restricting the number of admissions.

Regarding increasing releases from federal and state prisons, some suggest considering the following for immediate release: inmates nearing the end of their sentence (who are expected be released in the next few months); those in minimum security facilities and who are on work release; those who are medically fragile or are older; and those whose offense is considered “minor” or have a “low likelihood” of committing another serious offense.[1]

Many prisoners have sought compassionate release—the release of people who are facing imminent death and who pose no threat to the public. But this has proven a lengthy and cumbersome process, some of the shortcomings being the requirement that a person be extremely close to death or so incapacitated that they do not understand why they are being punished; the requirement of a statement from a medical professional; and the ability of decision-makers to overrule recommendations from medical professionals and prison staff.[2]

Some have pointed their finger at the new policies to release prisoners, calling them opportunistic political moves to try to solve the problem of prison overcrowding that preceded the pandemic. But this was only one of the many outcries from the public regarding the release of prisoners.

 

Why Release?

The WHO has pointed out that due to the concentration of people that is inevitable in prisons, inmates find themselves in a state of special vulnerability regarding COVID-19.[3]

However, the virus is not the only problem, or it would be a smaller problem if it were not for the poor health of inmates. The WHO has also noted that inmates, regardless of the pandemic, already tend to suffer from graver health issues than the general population. These health issues stem from weakened immune systems, caused by lack of sunlight, stress, malnutrition, and such diseases as tuberculosis, from which inmates particularly suffer.

One of many overcrowded prisons in the world.

Adding to the health problems that exist—and have existed for a long time—in prisons, the environment itself makes social distancing impossible. Compared to cruise ships and nursing homes, two other types of environments considered prominent incubators for the virus, prisons possess comparable or smaller quarters and people do not have in-room access to the necessary hygiene products and water.[4] 

This situation is made worse by the fact that many prisons suffer from overcrowding and poor overall conditions and that prisoners are put in collective cells that are too small. Many of these situations have already reached the European Court of Human Rights and suffered their condemnation.[5]

 

Why Punish and When Do We Stop?

The discussion also made the public ask itself, even if subconsciously: Why do we punish? What are the limits of punishment? When is punishment over?

In Portugal, when the state intervenes by utilizing criminal law—that is, when it criminalizes any behavior and punishes it—it must do so in obedience to the constitutional principle of necessity. This means that criminal law comes forward not arbitrarily but only to protect lawful values inscribed in the constitution or derived from it. These are values that correspond to the necessary conditions for the individual’s free development, to the realization of his fundamental rights, and to the sound functioning of a society built around these goals.[6]

This means that criminal sanctions serve the purposes of protecting lawful values and aiming to socially rehabilitate the offender. Both these purposes are considered when determining the length of the prison sentence.

Prison of Coimbra in Portugal.

Despite being inscribed in the criminal code as one of the purposes of the prison sentence, social rehabilitation often seems not to be a priority, its failure being one of the weapons utilized to argue the failure of criminal law. One needs only to look at the lack of conditions from which prisons suffer to observe, as many criminologists have already noted,[7] that in many cases it dissocializes more than it socializes.

This fact, combined with the perception that the public has of prison, helps cement the popular idea that people should not leave prison before the time prescribed in their sentence, that they should be punished until the end, for there is no chance they will be rehabilitated before that. With these ideas in mind, it easily arises in the public discourse that someone who has committed a crime is a criminal forever and so should be forever punished, without the opportunity for rehabilitation, for there is no chance of it happening.

 

The Prison and Plague

In his famous book The Plague, first published in 1947, the Algerian-born French philosopher and Nobel Prize winning writer Albert Camus tells the story of the fictional town of Oran, which is stricken by the plague.

In his story, the people of Oran are confined to their town and homes because of this plague. At one point, Camus reflects on how their condition is equal to that of exiles and prisoners: “Thus, too, they came to know the incorrigible sorrow of all prisoners and exiles, which is to live in company with a memory that serves no purpose. . . . Hostile to the past, impatient of the present, and cheated of the future, we were much like those whom men’s justice, or hatred, forces to live behind prison bars.”[8]

Albert Camus

There could not be a better description of what many of us went through in the past months of the year 2020 due to the pandemic. However, even if we felt like this, with different words but with the same feeling, parted from family, friends, and lovers, did it serve to make us reflect? Did it make us more compassionate and understanding of our fellow man?

The discussion surrounding the release of prisoners during the pandemic is, in my understanding, of special importance. It had the capacity to bring the topic of prison and inmates back into the public eye—even if briefly and amid the greater concerns of the pandemic, in which we are still living. In this way, it allowed for the public to be made aware, once more, of the special vulnerability of inmates that derives from their poor health and the poor prison conditions in which we keep them, even in the twenty-first century.

However, despite being made aware of the problems faced by inmates, and sharing the feeling of confinement, the public response to releases during the pandemic was still stained, for the most part, with intolerance. Besides the already mentioned accusations of releases being a “quick fix” for the prison overcrowding problem, less elaborated arguments could be summed up in the following statement: “Prisoners should stay in prison.” It was even possible to hear some people saying that not only should prisoners not be released earlier, or on time, but they should stay in prison forever.

This sort of speech was not novel or exclusive to the pandemic. That specific discussion was only a symptom of a greater problem: the way society still conceptualizes punishment. I had the opportunity to witness this firsthand. In the summer between the two years of my master’s degree in criminal law, I worked as a tour guide in an exhibition dedicated to celebrating 150 years since the abolition of the death penalty in Portugal. It was not uncommon to hear people say that it was a mistake to abolish it and that it should be brought back.

Of course, this is the extreme end of that sort of speech, but it is common for people to think about prison as nothing more than punishment, as if the more suffering is inflicted, the more justice will be done. In today’s criminal doctrine, at least in the European continental tradition, the conceptualization of prison as pure retribution is largely obsolete. Prison is not supposed to aim at the past, punishing the offender as an incarnation of divine retribution, but should be aimed at the future, in helping him live his life responsibly without committing crimes by socially rehabilitating him.

Offenders, despite having committed crimes, are meant to be treated as human beings, being recognized for their dignity as well as granted a chance for recovery and redemption. How would we have felt if someone had told us that never again should we leave our homes? Should we never see our loved ones again? Should we never hope for the future?

As much as we need a change in public and criminal policy, we need a change in the public conscience about the purpose of prisons and the value of human dignity. We certainly had, and still have, the opportunity to let the virus teach us something about prison and about humanity.

 

[1] Peter Wagner and Emily Widra, “Five Ways the Criminal Justice System Could Slow the Pandemic,” Prison Policy Initiative (website), March 27, 2020, https://www.prisonpolicy.org/blog/2020/03/27/slowpandemic/.

[2] Emily Widra and Wanda Bertram, “Compassionate Release Was Never Designed to Release Large Numbers of People,” Prison Policy Initiative (website), May 29, 2020, https://www.prisonpolicy.org/blog/2020/05/29/compassionate-release/.

[3] WHO Regional Office for Europe, “Preparedness, Prevention and Control of COVID-19 in Prisons and Other Places of Detention: Interim Guidance,” March 15, 2020, 1.

[4] Aleks Kajstura and Jenny London, “Since You Asked: Is Social Distancing Possible behind Bars?” Prison Policy Initiative (website), April 3, 2020, https://www.prisonpolicy.org/blog/2020/04/03/density/.

[5] Recent cases include J.M.B. Et Autres c. France [J.M.B. and Others v. France], 9671/15, May 30, 2020, https://hudoc.echr.coe.int/eng#{%22itemid%22:[%22001-200446%22]}, and Sukachov v. Ukraine, 14057/17, May 30, 2020, https://hudoc.echr.coe.int/eng#{%22itemid%22:[%22001-200448%22]}.

[6] Claus Roxin, “O Conceito de Bem Jurídico Como Padrão Crítico da Norma Penal Posto à Prova,” Revista Portuguesa de Ciência Criminal 23, no. 1 (January–March 2013): 12.

[7] One of the fundamental works in this regard is: Erving Goffman, Asylums: Essays on the Social Situation of Mental Patients and Other Inmates (London: Penguin Books, 1991).

[8] Albert Camus, The Plague (Harmondsworth: Penguin Books, 1960), 69.

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SLI Awards for Projects to Increase Mindfulness among Educators in South Africa and Promote Mother and Child Health in Puerto Rico

August 5, 2020

Two Sylff fellows have been selected for a Sylff Leadership Initiatives (SLI) award. SLI supports Sylff fellows’ initiatives to change society for the better with awards of up to US$10,000. (Their applications were received last fiscal year and reviewed before the suspension of new applications for SLI.)

The two winners are Liza Hamman and Holly Horan.

Liza Hamman

Liza Hamman completed her PhD at the University of the Western Cape as a Sylff fellow and is currently working as a department head at a vocational education college in South Africa.

With this grant, she will address the social and emotional challenges faced by both educators and students in South Africa by developing an online, mindfulness training course. “It is my hope that this award will benefit many South African teachers,” said Hamman.

 

Holly Horan

Holly Horan, a Sylff fellow in 2015–16 at Oregon State University who was also awarded an SRA grant in 2016, is a clinical biocultural medical anthropologist at the University of Alabama in the United States.

With the SLI grant, as an academic and a birth and postpartum doula, she will promote a model of integrated maternity care in Puerto Rico by organizing an international conference for multiple stakeholders. Over the long term, she aims to launch a political and economic movement for health systems reform.

The Sylff Association secretariat is excited to provide support to fellows who are taking social action by applying their ideas and expertise to build a better world for all.

Congratulations to the two Sylff fellows on winning the award. Barring disruptions due to the COVID-19 pandemic, the projects will be carried out over a year in their respective countries.

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Applications Closed but Fundraising Continues for COVID-19 Relief for Sylff Fellows

August 3, 2020

The Sylff Association secretariat would like to inform you that no new applications for COVID-19 Relief for Sylff Fellows will be accepted after August 2, 2020. Our budget for the relief is running short as there are continuing demands for support even after we disbursed our relief funds in mid-July. The applications that we received before the above date are now being reviewed and may be supported contingent on our fundraising results.

On this occasion, the secretariat would like to ask the Sylff community to pitch in to increase our funding resources to support more fellows who are struggling to continue their studies and research towards their degrees. Please click How to Give for your donation. (Donation campaign closed on November 13, 2020.)

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Online Fundraising Launched to Enable Sylff Fellows to Continue Their Studies

July 29, 2020

The Sylff Association secretariat has launched an online fundraising system to accept donations via credit card in order to help finance COVID-19 Relief for Sylff Fellows. As already announced, donations may also be made via bank transfers. (Donation campaign closed on November 13, 2020.)

This relief is intended to help defray Sylff fellows’ living expenses and encourage them to continue their studies and research at their home Sylff institutions despite the current difficulties due to COVID-19. (For details, please refer to the relief initiative page, https://www.sylff.org/covid-19-relief-for-sylff-fellows.)

The secretariat hopes that the online fundraising system will facilitate the process of donation.

 

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Action to Address a Stakeholder-Identified Need: Development of a Questionnaire to Improve Resolution after Medical Injury

July 27, 2020
By 25572

Associate Professor Jennifer Moore, a former Sylff fellow at Massey University in New Zealand, implemented a research project to assess the needs of injured patients and their families after medical injury with funding from Sylff Leadership Initiatives (SLI) from January 2019 to April 2020. The survey tool she developed and refined throughout the project is expected to facilitate better and happier reconciliation processes between healthcare organizations and injured patients and families after medical injury.

* * * 

“I wish there had been a questionnaire like this that was given to me after the hospital injured me! I recently had a hip replacement, and the provider posted a survey to me. It was so bad that I didn’t complete it. I thought, ‘Do these people have common sense? What does this mean?’ I wonder if they didn’t do what you are doing and [trial] the survey with the actual patients. I think it is so important to actually trial test it on patients first.” (Injured patient from New Zealand, comments during a cognitive interview, January 2019. The word in brackets in the quotation was edited by the author).

 

Introduction

This project was the first to attempt to develop a questionnaire to assess injured patients’ and families’ needs after medical injury. We pretested a draft version of the questionnaire with injured patients and families in New Zealand and the United States. In the quotation above, the injured patient highlights the importance of pretesting questionnaires to increase the likelihood that it will be an effective tool.   

Medical injury is unexpected harm caused by medical care. After heart disease and cancer, medical injuries have been identified as the third leading cause of death in the United States; this conclusion is consistent with findings from research undertaken in other countries, such as Canada, Japan, and New Zealand, and these statistics have generated calls for “greater attention” to medical injury because of the scale of this global issue.[1] An additional well-documented issue is that healthcare institutions’ responses to medical injuries, particularly their attempts at resolution, frequently fail to meet patients’ expectations and needs.[2] The literature also highlights that poor responses from healthcare organizations exacerbate the psychological, physical, and financial effects of medical injuries.[3]

During my recent research about the resolution of medical injury, the key stakeholders and participants identified another important social problem that requires action. Most healthcare organizations are interested in doing a better job of meeting injured patients’ and families’ emotional, informational, and practical needs after medical injury but currently lack tools to evaluate how well they met those goals.

Jennifer with her daughter Rebecca and two research participants

Research Objective, Methods, and Dissemination

Therefore, this project’s key objective was to address that gap, and stakeholder-identified need, by developing a questionnaire that healthcare organizations can use to assess how well they met the needs of patients who suffered medical injuries during their care. To develop the questionnaire, we undertook the following steps.

  • We designed a draft version of what we call the Medical Injury Reconciliation Experiences Survey (MIRES). This draft was based on findings from our two previous studies of injured patients’ experiences of nonlitigation approaches to resolving medical injuries.
  • We performed a content analysis of transcripts from a stratified random sample of interviews conducted with injured patients in New Zealand and the United States in 2015–16.
  • We extracted themes describing what is important to patients following medical injury and developed a draft questionnaire with question domains and items corresponding to these themes.
  • We revised the draft questionnaire following review and feedback from expert clinicians, risk managers, and patient advocates.
  • We pilot tested the revised questionnaire on a sample of 24 injured patients and family members in the United States and New Zealand, conducting cognitive debriefing interviews focused on the comprehensibility and completeness of the questionnaire.
  • We further revised the instrument based on this feedback. Thirty-seven revisions were made in response to their suggestions.
  • We traveled to New Zealand to disseminate and implement the questionnaire to key stakeholders in New Zealand, such as district health boards' public hospitals, the Ministry of Health, the Accident Compensation Corporation, and the patient advocacy group Acclaim. I traveled around New Zealand (particularly Christchurch, Dunedin, and Wellington) to meet with representatives from the key stakeholder organizations to explain the questionnaire to them and to discuss how best to implement it in their organization.
  • We are in regular, ongoing contact with the representatives of the key stakeholder organizations in New Zealand to answer their questions about the questionnaire and to ask about their initial experiences using it.
  • We submitted a paper to an academic journal that reports the results of the survey development.
  • After the COVID-19 travel bans are lifted, we will travel to New Zealand again at the stakeholders’ request to discuss implementation progress and to undertake any further edits to the questionnaire that may be required.
  • Once the COVID-19 travel bans are lifted, I will also travel to the United States again to discuss implementation progress at the participating hospitals. The intention was to visit the United States in May 2019, but that trip was canceled because of COVID-19. (Sylff funded the New Zealand part of the project, not the US part. We are very grateful to Sylff for their support.)

Once our research paper is accepted, it will be important to disseminate the paper, because our project is the first to attempt to develop a questionnaire to assess injured patients’ needs after medical injury. Further research could use our questionnaire to undertake a full validation study.

The final version of the questionnaire included the following domains:

  • perceptions of communications with healthcare providers after the injury (11 items);
  • perceptions of remedial gestures, such as apology and compensation (12 items);
  • indicia of the patient’s overall satisfaction with the reconciliation process (3 items);
  • the nature and impacts of the injury (5 items); and
  • characteristics of the patient (5 items).

 

Conclusion

Jennifer with a patient's research participant's puppy during the cognitive debriefing interview about the draft questionnaire.

Injured patients and their families expressed the view that they appreciated the opportunity to assist with the survey design process. The survey was feasible to administer with pencil and paper, taking around 10 minutes to complete. The MIRES appears to be comprehensible and acceptable to patients and offers a practicable means by which healthcare organizations can assess how well their reconciliation processes are meeting injured patients’ needs. One of the US patients who participated in this project observed that the “questionnaire has the power to help so many other patients like me.”    

[1] Martin Makary and Michael Daniel, “Medical Error—The Third Leading Cause of Death in the US,” British Medical Journal 353 (May 2016): 2139, https://doi.org/10.1136/bmj.i2139.

[2] Frederick S. Southwick et al., “A Patient-Initiated Voluntary Online Survey of Adverse Medical Events: The Perspective of 696 Injured Patients and Families,” BMJ Quality and Safety 24, no. 10 (October 2015): 620–29.

[3] Elaine O’Connor et al., “Disclosure of Patient Safety Incidents: A Comprehensive Review,” International Journal of Quality in Health Care 22, no. 5 (October 2010): 371–79.

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Support Programs and COVID-19 (Updated July 22, 2020)

July 22, 2020

The Sylff Association secretariat regrets to inform you that no new applications for support programs (including Sylff Research Abroad, Sylff Leadership Initiatives, Sylff Project Grant, and Local Association Networking Support) has been accepted since July 22, 2020. This is in light of the difficulty of conducting activities entailing long-distance and overseas travel as well as convening gatherings of large groups of people under the current COVID-19 situation. We will continue to monitor the situation with the COVID-19 outbreak, and update you if there are any changes in support programs.

For current support program participants, there is no change in the operation as announced on April 6, 2020. If the current situation prevents you from completing your activities as proposed, either partially or entirely, please contact sylff[at]tkfd.or.jp (replace [at] with @) to share details and discuss ways to deal with the situation.

During this period, the secretariat will reshape the support programs in such ways as to promote fellow’s academic advancement and leadership development so they may better fulfill Sylff’s mission in spite of changing social conditions.

The secretariat also welcomes new ideas on programs from Sylff Association members that may be implemented not just during a pandemic but also as we return to a reality that is likely to have been vastly transformed by the events of this year. Please share them with the secretariat by the end of September 2020 so we can take them into account during our review.

We continue to be committed to supporting Sylff fellows. We regret having to suspend and reshape the support programs but hope to come up with innovative ways to move forward in the face of these unprecedented challenges.